Interoperability of Primary Child Health Data

Leaders:

Liesbeth Siderius, Pediatrician, Rare Care World Foundation

Marc de Graauw, Independent Healthcare ICT standards consultant / Software developer, magrit.nl

 

Promoting the dissemination and generation of knowledge on rare diseases in children depends on the availability and interoperability of primary child health data. A lot of work has been going on in a variety of places to further this development, including presentations at LOINC conferences in Annecy and Atlanta, as well as discussions in the X-eHealth project and in the IPS community. A first draft HL7 FHIR Implementation Guide for Rare Diseases in Child Health is available and will be a topic for discussion during this session. A strong connection is also felt with the CHOICE project (Child Health Obstetrics International Collaboration and Exploration).